If I’m Not Here Tomorrow

A Complete Future-Planning Guide and Care Workbook for Special Needs Parents, Caregivers, and Guardians

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The guided, step-by-step workbook to get daily care routines, emergency protocols, and legal details out of your head and onto paper.

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What if you were hospitalized tonight and couldn’t answer your phone?

As special needs parents, we carry a whole universe of unwritten knowledge in our heads:

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  • The exact way to give a medication without resistance.
  • The subtle, non-verbal cues that mean pain vs. sensory overload.
  • The specific routine that prevents a total breakdown.
  • The legal and financial rules surrounding your child’s future.

No one else automatically knows these details—even if they love your child deeply. If I’m Not Here Tomorrow was created by local parent and advocate Jessica Willits to bridge that gap, giving standby guardians, family members, and emergency caregivers a loving, clear place to start.

A Complete, 140-Page Operational Blueprint

    • 24-hour routine snapshots, immediate contact cascades, medication logs, and grab-and-go bag checklists for emergency room visits.

    • Sensory profiles (seekers vs. avoiders), non-verbal communication keys, safe foods, countdown tools, and calming protocols.

    • Emergency sheets for Seizures, Anaphylaxis, G-Tubes/Dysphagia, and Respiratory care, plus elopement/wandering and water safety registers.

    • Special Needs Trust (SNT) distribution rules, Letter of Intent (LOI) storage locations, SSI/Medicaid waiver tracking, and housing asset directives.

    • IEP/504 accommodations condensed for temporary guardians, school bus safety plans, and unwritten relationship rules.

  • Alarm codes, digital patient portal logins, utility shutoffs, autopay schedules, and physical document vault locations.

  • Turning 18 legal frameworks, adult HCBS waivers, supported employment goals, and non-negotiable dignity guidelines.

  • Dedicated sections for complex clinical nursing care (G-tubes/FLACC scales), BCBA behavioral tracking/crisis plans, and 5-minute disaster evacuation routes.

Designed for Real Life

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  • Built for Pacing, Not Overwhelm: Designed to be filled out page-by-page at your own speed—not completed in one stressful sitting.
  • A Living Care Blueprint: Flexible and adaptable, this workbook is designed to grow alongside your loved one as their routines, needs, and goals evolve over time—putting personhood over paperwork.
  • Expert Knowledge, Parent Perspective:
Combines real-world special needs parenting experience with authoritative insights from legal, medical, and therapeutic specialists. It gives you the structure of a professional clinical record with the warmth and heart of a mother’s care guide.
  • Instant Emergency Readiness: Features quick-reference 24-hour snapshots so temporary caregivers, standby guardians, or first responders have essential details in hand within minutes.

Give Your Family the Gift of Certainty

You don't have to do it all today, but starting page one gives your family protection for tomorrow.

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